Advocacy, Access & Migraine at Work
You are currently watching a preview of this interview. Unlock the full version by upgrading to an Access Pass bundle! Get FREE access to 8 expert interviews from Day 1 and Day 2 when you register today!
Key Questions
- What is the mission of The Migraine Trust, which countries does it operate in, and what are its primary areas of focus?
- What is patient advocacy, and why is it important?
- What steps can patients take to advocate for themselves?
- What challenges do patients encounter in accessing migraine treatments in the U.K., particularly in terms of obtaining CGRP-targeting medications?
- What are the priorities of The Migraine Trust in terms of changing policy and discussing migraine care with the government?
- How can people in the U.K. support the efforts of The Migraine Trust?
- How has the burden of migraine been affected by rising costs and world events?
- How does migraine affect people at work, and what can be done to improve workplace support?
- Where can people learn more about The Migraine Trust and its work?
Interview Notes
- The Migraine Trust
- Coalition of Headache and Migraine Patients (CHAMP)
- Study: “Dismissed for too long: The impact of migraine on children & young people”
- The Migraine Trust article: “Research Reveals That Over a Third of People Have Experienced Discrimination at Work Because of Their Migraines”
- Report: “The State of the Migraine Nation: What Is the Impact of Migraine in the U.K.? Rapid Research Review”
- The Migraine Trust toolkits
- The Migraine Trust: Get involved
- Harvard Business Review article: “Migraines Are a Serious Problem. Employers Can Help”
Treatments Mentioned
- Atogepant (Qulipta, Aquipta in the U.K.)
- CGRP monoclonal antibodies (mAbs)
- CGRP small-molecule receptor antagonists (gepants)
- Rimegepant (Nurtec, Vydura in the U.K.)
- Ubrogepant (Ubrelvy)
Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.
Rob Music
Chief Executive
The Migraine Trust, London
Rob joined The Migraine Trust as chief executive in February 2021 and through positive collaborations is determined to see improvements in migraine care, treatments, and access for people living with migraine. Rob has over 30 years of experience working for healthcare charities, starting out as a fundraiser, and before his current position, he held similar roles at Jo’s Cervical Cancer Trust and Endometriosis U.K. He brings a range of skills, including implementing organizational growth and development, public affairs management, service development, health and policy influence, fundraising, and media and communications.
Purchase full access to the entire 2024 Summit to unlock:
- All expert interviews with separate audio (MP3) files & transcripts
- 30 extended, uncut interview editions with hours more expert footage
- Lifetime on-demand access with no annual fee to 2024 Summit
- Interview Summaries
- Treatment Directory & Guidelines
- And much more!
Related Talks for: Day 5 (2024)
Unofficial Side Effects of CGRP Monoclonal Antibodies
Robert P. Cowan, MD
Migraine, TMD & Neck Pain
Rashmi B. Halker Singh, MD, FAHS, FAAN
The Migraine Trust is dedicated to helping people affected by migraine. We are the only UK migraine charity providing information and support, campaigning for awareness and change, and funding and promoting research.
Meditation and Sleep Made Simple
We make mental health support accessible to everyone, no matter their background or experience. Through our flagship Headspace app, we provide mindfulness tools for everyday life, including meditations, sleepcasts, mindful movement and focus exercises.
Don't miss out on over six hours of bonus expert interview content we just couldn't fit without the 30-minute featured talk. Get all these extra insights when you order the MWS All Access Pass, VIP Pass, or Boxed Set.
