ABOUT THE MIGRAINE WORLD SUMMIT

ABOUT THE MIGRAINE WORLD SUMMIT

Each year dozens of leading migraine experts, doctors and specialists from around the world are interviewed to help answer the most difficult questions for those with migraine in desperate need of relief.

The virtual event is free for the first 8 days, with an email registration. The event is live in March each year. For those who miss out or cannot attend live, all the interview recordings and more are available to order for home delivery or instant online access. All the video, audio and transcripts are available anytime on demand.

The Migraine World Summit is a socially driven organization that partners with and supports nonprofits. Up to 50% of funds raised from the Migraine World Summit goes towards our migraine nonprofit partners listed on the homepage, who are doing wonderful work to help fund migraine research, support patients and advocate for migraine sufferers.

To date, we’ve donated over $20,000 USD to migraine and headache nonprofits, groups, and foundations. The small percentage of individuals who purchase a copy of the Migraine World Summit each year helps sustain the organization. The Migraine World Summit does not solicit donations or compete with other nonprofits for fundraising.


Our mission is simple. To reduce the global burden of migraine.


We believe that by giving unprecedented access to many of the world’s top experts you’ll get high quality, trustworthy information which you can discuss with your health care professional and use to improve your own situation for the better.

(Images clockwise from top right: Expert panel with co-hosts Carl & Paula at 2019 in-person event. Audience. Behind the scenes film shoot of experts. Media coverage with celebrity amabassadors; Terrell Davis and Kristin Chenoweth) 

MIGRAINE FACTS

  • Migraine is more common than diabetes, epilepsy and asthma combined. (1)
  • One in seven people suffer from migraine… that’s one billion globally. (2)
  • Less than half of those with migraine consult a physician for it. (3)
  • For those who do seek help, finding the right doctor can be difficult. Just 4 hours are committed to headaches disorders in undergraduate medical training worldwide. (4)
  • The US is one of the few places where there are subspecialty certifications for headache medicine, yet there is only 1 headache specialist for every 85,000 patients. (5) Most countries have similar shortages.
  • The estimated annual cost of migraine in the US alone is over $17 billion. (6)
Sources
  1. Steiner TJ et al. The prevalence and disability burden of adult migraine in England and their relationships to age, gender and ethnicity. Cephalalgia. 2003;23(7):519-527.
  2. Steiner TJ et al. Migraine: the seventh disabler. The Journal of Headache and Pain 2013, 14:1.
  3. Pavone E et al. Patterns of triptans use: a study based on the records of a community pharmaceutical department. Cephalalgia. 2007;27(9):1000-4.
  4. World Health Organization. Atlas of headache disorders and resources in the world 2011.
  5. Mauser, Emily D., and Noah L. Rosen. “So many migraines, so few subspecialists: Analysis of the geographic location of United Council for Neurologic Subspecialties (UCNS) certified headache subspecialists compared to United States headache demographics.” Headache: The Journal of Head and Face Pain 54.8 (2014): 1347-1357.
  6. Goldberg, Lawrence D. “The cost of migraine and its treatment.” The American journal of managed care 11.2 Suppl (2005): S62-7

ABOUT CARL

Carl stopped taking his health for granted at an early age due to migraine. He has had migraine for 27 years. Over this time health has become central throughout his life and work. This includes working with some of the biggest health companies in the world.

Today, he works with several charities, foundations, and organizations to help reduce the global burden of migraine including Headache Australia, the Brain Foundation, the Coalition of Headache and Migraine Patients, the Global Patient Advocacy Coalition and the World Headache And Migraine Alliance. He is a member of the International Headache Society, he acts on several advisory councils and he also is the editor at MigrainePal.com and co-host for the Migraine World Summit.

Carl is a public and passionate patient advocate for migraine. He has spoken nationally and internationally about migraine and the need to increase research funding, reduce stigma, increase patient support and education.

ABOUT PAULA

Paula K. Dumas is a lifelong migraine warrior, Founder and Managing Editor of MigraineAgain.com.

After juggling a demanding career with CNN, Apple and Disney, she shifted gears to devote herself to family, faith and health advocacy. Although she’s lost a decade worth of days to migraine, she’s been able to reduce her frequency from 25 days a month to less than a day a month.

Now, she’s helping others to do the same.

To advocate for people with migraine, Paula serves on the Board of the American Migraine Foundation (AMF), the steering committee of the Coalition of Headache and Migraine Patients (CHAMP), the International Headache Society Global Patient Advocacy Committee, and was nominated for a WEGO Health Advocate award. Each year, she and her husband Karl lobby legislators on Capitol Hill as part of the US Headache on the Hill organized by Association of Headache Disorders Advocacy (AHDA).

To raise awareness about migraine, she’s spoken at the International Headache Academy and the first Migraine World Summit, as well as Research America’s Annual National Health Forum. She’s presented her research at the American Academy of Neurology conference, one of two academic research studies she co-authored (CaMEO and My Migraine Voice). Together, these research studies measure the impact that migraine has upon people’s lives, relationships, work and finances in over 31 countries.

To educate people with migraine, she’s authored over 300 articles on migraine health and wellness, and produced over 100 videos, interviews and podcasts. With Carl and her husband Karl, Paula co-founded the World Health Education Foundation, producing the largest live event for people with migraine, Migraine World Summit Live at UCLA in March 2019.

To create healthier workplaces for people with migraine, Paula serves as chair of the MigraineAtWork.org campaign, focused on helping employers and employees tackle the widespread challenge of working through painful attacks. Each year, Paula co-leads an amazing global team of people with migraine who produce the Migraine World Summit, demonstrating the resilience and commitment of these courageous warriors.

To provide greater support to people with migraine, Paula, Karl and Carl produced Migraine Community Groups in partnership with Miles for Migraine. In addition, Paula and Karl lead the largest social community for people with migraine, The Daily Migraine, offering help, hope and humor and a private support group to aid those suffering from this chronic, disabling disease.

Discover New Treatments, Research & Best Practices From Dozens of World-Leading Experts, Doctors & Specialists

Discover New Treatments, Research & Best Practices From Dozens of World-Leading Experts, Doctors & Specialists

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ABOUT US

The Migraine World Summit is your chance to improve your understanding of migraine headaches from over 30 of the world's leading experts and specialists. Read more

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