ABOUT THE MIGRAINE WORLD SUMMIT

ABOUT THE SUMMIT

36 world leading migraine experts, doctors and specialists from around the world are being interviewed to help answered the most difficult questions for migraineurs in desperate need of relief.

The event is free whilst it’s live for a week in April each year.

Our goal is simple. To reduce the global burden of migraine. We believe that by giving unprecedented access to many of the world’s top expert’s you’ll get high quality, trust worthy information which you can discuss with your health care professional and use to improve your own situation for the better.

For those who miss out or cannot attend live, all the recordings and more are available to order. All the video, audio and transcripts are available anytime on demand. Up to 50% of funds raised from the Summit will go towards our migraine charity partners listed on the event page who are doing wonderful work to help fund migraine research, support patients and advocate for migraine sufferers.

To date, we’ve donated over $10,000 to migraine specific charities, groups and foundations.

MIGRAINE FACTS

A few interesting migraine statistics:

  • Migraines are more common than diabetes, epilepsy and asthma combined (1).
  • One in seven people suffer from migraines… that’s one billion globally (2).
  • Less than half those with migraine consult a physician for it (3).
  • For those who do seek help, finding the right doctor can be difficult. Just 4 hours are committed to headaches disorders in undergraduate medical training worldwide (4).
  • The US is one of the few places where there are subspecialty certifications for headache medicine, yet there is only 1 headache specialist for every 85,000 patients (5). This shortage is consistent in most countries.
  • The estimated annual cost of migraine in the US alone is over $17 billion.

SOURCES:

1) Steiner TJ et al. The prevalence and disability burden of adult migraine in England and their relationships to age, gender and ethnicity. Cephalalgia. 2003;23(7):519-527.
2) Steiner TJ et al. Migraine: the seventh disabler. The Journal of Headache and Pain 2013, 14:1.
3) Pavone E et al. Patterns of triptans use: a study based on the records of a community pharmaceutical department. Cephalalgia. 2007;27(9):1000-4.
4) World Health Organization. Atlas of headache disorders and resources in the world 2011.
5) Mauser, Emily D., and Noah L. Rosen. “So many migraines, so few subspecialists: Analysis of the geographic location of United Council for Neurologic Subspecialties (UCNS) certified headache subspecialists compared to United States headache demographics.” Headache: The Journal of Head and Face Pain 54.8 (2014): 1347-1357.
6) Goldberg, Lawrence D. “The cost of migraine and its treatment.” The American journal of managed care 11.2 Suppl (2005): S62-7.

ABOUT CARL

You and Carl probably aren’t so different. You both get migraines and when they occur they can ruin your day.

Very few people really understand what you go through unless they have migraines themselves. It’s not just the pain and agony of the migraine themselves, but the risk of the next migraine attack occurring at the worst possible time… It can keep you constantly on edge… Making it difficult or impossible to confirm plans and driving a wedge between you and everyone else.

Migraines are a neurological disorder that can eventually impact every aspect of your life. Research has shown the heavy toll chronic migraine takes on relationships, work, happiness and your quality of life.

Carl didn’t choose to have migraines and neither did you.

Migraines have been a part of Carl’s life for 26 years. He experiences migraine with aura. A shoulder injury playing sport triggered a rapid decline from episodic migraines, with a frequency of 2 migraines a year, to chronic migraines which lasted 7 years. At his worst, he could experience 6 attacks a week.

3 years ago he recovered from chronic migraines and has been in remission with around 6 attacks per year. No cure, but still life changing.

Recovering from chronic migraines was by far the hardest thing he has ever done.

You can be smart, persistent, conduct research, follow the doctor’s directions instructions and still fail over and over.

For so many reasons managing migraines is difficult. But it is absolutely necessary.

ABOUT PAULA

Paula K. Dumas is a lifelong migraine warrior, Founder and Managing Editor of MigraineAgain.com.

After juggling a demanding career with CNN, Apple and Disney, she shifted gears to devote herself to family, faith and health advocacy. Although she’s lost a decade worth of days to Migraine, she’s been able to reduce her frequency from 25 days a month to less than a day a month.

 

Now, she’s helping others to do the same.

Paula serves on the Board of the American Migraine Foundation, and was nominated for a WEGO Health Advocate award.

She’s spoken at the International Headache Academy and the first Migraine World Summit, and advocates on behalf of the American Headache Society and European Headache Alliance.

She’s authored over 200 articles on migraine health and wellness, and produced videos and podcasts to give hope and help to those suffering with this chronic, disabling disease.

Introduction to Paula: Footage from 2016 Migraine World Summit Interview

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